98-34374. Data Systems as the Scientific Foundation in Support of Newborn Screening Programs Workshop

[Federal Register Volume 63, Number 249 (Tuesday, December 29, 1998)]
[Notices]
[Page 71652]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 98-34374]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Centers for Disease Control and Prevention


Data Systems as the Scientific Foundation in Support of Newborn 
Screening Programs Workshop

    The National Center for Environmental Health (NCEH) of the Centers 
for Disease Control and Prevention (CDC) announces the following 
meeting.
    Name: Workshop on Data Systems as the Scientific Foundation in 
Support of Newborn Screening Programs.
    Times and Dates: 8:15 a.m.-5:30 p.m., February 24, 1999: 8:15 a.m.-
12 p.m., February 25, 1999.
    Place: Emory Inn and the D. Abbott Turner Center, 1615 Clifton 
Road, Atlanta, Georgia 30329-9952. Telephone [phone], fax 404/
712-6025.
    Status: Open to the public, limited only by the space available. 
The meeting room accommodates approximately 75 people. Registration 
prior to the meeting is suggested.
    Purpose: Newborn screening for metabolic disorders and 
hemoglobinopathies constitutes the largest national public health 
genetics program. The meeting will enable participants to review the 
current status of the collection and use of newborn screening data, 
and to discuss and give individual input on new strategies for 
future collection of population-based data to support and enhance 
newborn screening programs. This meeting will bring together leaders 
in metabolic disease; laboratory practice; genetics; public health; 
and other disciplines; and it is anticipated that the products from 
this workshop will be utilized during future workshops on newborn 
screening.
    Matters To Be Discussed: Review of data systems in support of 
newborn screening for use in the three core public health functions: 
assessment, policy development, and assurance/evaluation. Agenda 
items will include presentations on (1) Data Driven Public Health 
Genetics Programs; (2) A State's Data Warehouse; and (3) Linkage of 
Newborn Screening Data into maternal and child health (MCH) 
Programs; and case studies of newborn screening data systems for 
well-established and upcoming disorders and group discussions on 
data sources.
    Agenda items are subject to change as priorities dictate.

    Contact Person for More Information: Ellen P. King, 
Administrative Officer, Division of Birth Defects and Developmental 
Disabilities, NCEH, CDC, 4770 Buford Highway, NE, m/s F-45, Atlanta, 
Georgia 30341-3724. Telephone [phone], fax [phone]. 
Registration form available by request or at http://www.cdc.gov/
genetics/meeting.htm.
    The Director, Management Analysis and Services Office has been 
delegated the authority to sign Federal Register notices pertaining 
to announcements of meetings and other committee management 
activities, for both the Centers for Disease Control and Prevention 
and the Agency for Toxic Substances and Disease Registry.

    Dated: December 21, 1998.
Carolyn J. Russell,
Director, Management Analysis and Services Office, Centers for Disease 
Control and Prevention (CDC).
[FR Doc. 98-34374 Filed 12-28-98; 8:45 am]
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