99-15377. Estimation Methodology for Adults With Serious Mental Illness (SMI)  

  • [Federal Register Volume 64, Number 121 (Thursday, June 24, 1999)]
    [Notices]
    [Pages 33890-33897]
    From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
    [FR Doc No: 99-15377]
    
    
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    DEPARTMENT OF HEALTH AND HUMAN SERVICES
    
    Substance Abuse and Mental Health Services Administration
    
    
    Estimation Methodology for Adults With Serious Mental Illness 
    (SMI)
    
    AGENCY: Center for Mental Health Services, Substance Abuse and Mental 
    Health Services Administration, HHS.
    
    ACTION: Final notice.
    
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    SUMMARY: This notice establishes a final methodology for identifying 
    and estimating the number of adults with serious mental illness (SMI) 
    within each State. This notice is being served as part of the 
    requirement of Public Law 102-321, the ADAMHA Reorganization Act of 
    1992.
    
    EFFECTIVE DATE: October 1, 1999.
    
    FOR FURTHER INFORMATION CONTACT: Ronald W. Manderscheid, Ph.D., Chief, 
    Survey and Analysis Branch, Center for Mental Health Services, Parklawn 
    Building, Rm 15C-04, 5600 Fishers Lane, Rockville, MD 20857, (301) 443-
    3343 (voice), (301) 443-7926 (fax), rmanders@samhsa.gov (e-mail).
    
    Scope of Application
    
        All individuals whose services are funded through the Federal 
    Community Mental Health Services Block Grant must fall within the 
    definition announced on May 20, 1993, in the Federal Register, Volume 
    58, No. 96, p. 29422. Inclusion or exclusion from the estimates is not 
    intended to confer or deny eligibility for any other service or benefit 
    at the Federal, State, or local level. Additionally, the estimates are 
    not intended to restrict the flexibility or responsibility of State or 
    local governments to tailor publicly-funded systems to meet local needs 
    and priorities. Any ancillary use of these estimates for purposes other 
    than those
    
    [[Page 33891]]
    
    identified in the legislation is outside the purview and control of 
    CMHS.
    
    Background
    
        Pub. L. 102-321, the ADAMHA Reorganization Act of 1992, amended the 
    Public Health Service Act and created the Substance Abuse and Mental 
    Health Services Administration (SAMHSA). The Center for Mental Health 
    Services (CMHS) was established within SAMHSA to coordinate Federal 
    efforts in the prevention, treatment, and the promotion of mental 
    health. Title II of Pub. L. 102-321 establishes a Block Grant for 
    Community Mental Health Services administered by CMHS, which permits 
    the allocation of funds to States for the provision of community mental 
    health services to children with a serious emotional disturbance (SED) 
    and adults with a serious mental illness (SMI). Pub. L. 102-321 
    stipulates that States will estimate the incidence (number of new cases 
    in a year) and prevalence (total number of cases in a year) in their 
    applications for Block Grant funds. As part of the process of 
    implementing this new Block Grant, definitions of the terms ``children 
    with a serious emotional disturbance and ``adults with a serious mental 
    illness'' were announced on May 20, 1993, in the Federal Register, 
    Volume 58, No. 96, p. 29422. Subsequent to this notice, a group of 
    technical experts was convened by CMHS to develop an estimation 
    methodology to ``operationalize the key concepts'' in the definition of 
    adults with SMI. A similar group has prepared an estimation methodology 
    for children and adolescents with SED. The final SED estimation 
    methodology was published on July 17, 1998, in the Federal Register, 
    Volume 63, No. 137, p. 38661.
    
    Summary of Comments
    
        This final notice reflects a thorough review and analysis of 
    comments received in response to an earlier draft notice published in 
    the Federal Register, on March 28, 1997, Volume 62, No. 60, p. 14928.
        CMHS received only nine comments expressing opinions about the 
    proposed methodology. Several questions were raised. These questions 
    are summarized in four broad areas: Operational definition of SMI, 
    complexity of the methodology, differences among States, and other 
    related comments.
    
    Operational Definition of SMI
    
        Some comments suggested that the SMI definition was too broad.
        The final definition of SMI was published on May 20, 1993, in the 
    Federal Register, Volume 58, No 96, p. 29422. This definition cannot be 
    changed by the methodology outlined below.
        SMI was defined as the conjunction of a DSM mental disorder and 
    serious role impairment. The Diagnostic Interview Schedule (DIS) 
    estimates were not enhanced. A respondent had to have a DIS/Composite 
    International Diagnostic Interview (CIDI) diagnosis and an impairment 
    to qualify for the operational definition of SMI. This means that the 
    estimated annual prevalence of SMI is always equal to or less than the 
    DIS/CIDI estimates of disorder prevalence. The charge to the technical 
    committee was to make what it considered to be the best decisions based 
    on available data about impairment to operationalize the definition of 
    SMI. The report of the committee describes in great detail how and why 
    the technical experts chose specific indicators.
        It is important to note that Pub. L. 102-321 explicitly states that 
    SMI includes impairments in functioning. As a result, the technical 
    experts were required to include one component of the operational 
    definition that assesses functioning in social networks. Strict 
    criteria were used, such as reports of extreme deficits in social 
    functioning to qualify for this type of impairment. A respondent must 
    either have one of the following two profiles: (i) Complete social 
    isolation, defined as having absolutely no social contact of any type--
    telephone, mail, or in-person--with any family member or friend and 
    having no one in his or her personal life with whom he/she has a 
    confiding personal relationship; or (ii) extreme dysfunction in 
    personal relationships, defined as high conflict and no positive 
    interactions and no possibility of intimacy or confiding with any 
    family member or friend. These persons comprise about 10% of those 
    classified as having SMI. The remaining 90% either have a severe 
    disorder like schizophrenia or bipolar disorder, or a disorder and work 
    impairment, or a disorder and report being suicidal.
        The rationale for the 57% prevalence estimate of SMI among prison 
    inmates is well documented in the committee's report. A review of 
    epidemiological studies in inmate populations found that the average 
    estimated prevalence of any DIS disorder is 57%. The technical experts 
    concluded that all inmates with one of these disorders, by definition, 
    were functioning inadequately in social roles by virtue of the fact 
    that they were incarcerated.
        This definition was adopted for very practical reasons. It is 
    important to remember that the inmate population represents less than 
    one percent of the adult population, and the prevalence estimate of 57% 
    is based on published work.
        Some comments urged that the definition of SMI did not constitute 
    the service population for public mental health services.
        This final notice includes a statement about the scope of 
    application of the estimates. That statement defines what is and is not 
    intended by the definition and the methodology.
    
    Complexity of the Methodology
    
        Some comments noted that the use of the Baltimore sample as a basis 
    for estimating national SMI rates among elderly persons may have 
    introduced errors into the estimates for persons 55 years and older.
        The technical experts were mandated to arrive at the best estimate 
    based on currently available data. The Baltimore ECA data were the best 
    currently available for persons 55 years and older. Nationally 
    representative data would have been used if such existed. It will be 
    important in the future to improve the data available to produce 
    estimates for all age groups.
        Some comments were made about distortions in State estimates and 
    lack of theory.
        The technical experts used all available data on State-level 
    variables that could be obtained readily from the Federal government on 
    an annual basis and explored the effects of these variables in 
    predicting SMI. Such variables were deliberately selected to increase 
    the ease of application of the estimation methodology by the States in 
    the future. The experts believed and continue to believe that they 
    could do no less than exhaustively consider the full range of 
    potentially important predictors of SMI, irrespective of available 
    theory. The analytical iterations are explained in the committee's 
    report. These explanations provide all the detail a specialist in 
    applied statistics or demography would need to evaluate the procedures 
    adopted. These procedures are consistent with currently accepted 
    methods for making small area estimates. Government agencies currently 
    use similar methodologies to make estimates of other State-level social 
    policy variables.
        Some comments suggested that confidence intervals were not provided 
    for State prevalence estimates.
        Confidence intervals have been provided in this final notice, since 
    estimates are based upon samples rather than a complete enumeration.
    
    [[Page 33892]]
    
        Some comments suggested that the estimation methodology paper was 
    difficult to understand and that complex statistical procedures were 
    inadequately explained, with insufficient rationale.
        In writing the paper, the authors were sensitive to the importance 
    of being clear about major decisions. The authors have had a great deal 
    of experience writing reports of empirical studies for critical 
    scientific and peer review. By the standards of this scientific review 
    process, the level of documentation presented in the estimation 
    methodology report is quite high.
        Some comments indicated that no adjustment was made in the 
    methodology to address the phenomenon of different levels of reporting 
    of psychiatric symptoms by ethnic groups.
        The technical experts included information to discriminate 
    nonhispanic whites from all other racial groups in the model. No fine-
    grained distinctions were made about race/ethnicity because of the 
    small numbers of people in specific race/ethnicity subsamples in the 
    surveys that were analyzed. As part of the analysis, the technical 
    experts obtained all the information that was readily available from 
    the Census Bureau on Census Tract-level, County-level, and State-level 
    demographic variables. All these variables were included in efforts to 
    predict and estimate the prevalence of SMI.
        Some comments suggested that the factor analysis was inadequate and 
    that important issues not described (e.g., the number of variables in 
    the analysis or how missing data were handled) could have affected the 
    results.
        The factor analysis was carried out on a Census data file 
    containing County-level data from the 1990 Census. The sample size was 
    the number of Counties in the U.S., while the number of variables was 
    over 100 Census characteristics. Some of the characteristics were quite 
    highly correlated across Counties, like median household income and 
    mean household income, or the number of men in a County and the number 
    of women in a County. Factor analysis was used as a way of reducing 
    redundancy prior to performing further analyses. The factor analytic 
    procedures employed represent the state-of-the-art for similar data 
    reduction procedures.
        Some comments were made about the use of varimax rather than 
    oblique rotation, the decision to examine only the first ten factors in 
    the solution, and the use of factor-weighted scores.
        The group of technical experts explored both oblique and rigid 
    rotations and also looked at the unique factors after the first ten. 
    ``Unique factors'' refer to factors in which there is only a single 
    variable with a high loading. Variance was noted to be trivial after 
    the first ten factors. No factors after the first ten had more than one 
    variable with high loading. Factor-weighted and factor-based scales are 
    very highly correlated, therefore the choice of one over the other did 
    not affect the results of the analyses.
        Some comments noted that Census data are stronly influenced by 
    population size and suggested that this effect could be removed to find 
    a more meaningful structure.
        A similar procedure was actually used. All count variables were 
    transformed (e.g., number of vacant houses, number of people on 
    welfare) into population proportions. This procedure removes the 
    effects of population size.
        Some comments suggested that users of the public mental health 
    system have low levels of income. However, the key significant income 
    predictor was an interaction term for high income and urbanicity 
    associated with reduced prevalence of SMI.
        The technical experts were surprised to find the absence of high 
    income people was a stronger predictor of SMI than the presence of low 
    income people. This was investigated in considerable detail, trying a 
    number of different specifications in search of a low income effect. 
    These included a specification involving the assessment of 
    neighborhoods with a bimodal distribution of high income and low income 
    people, as well as a specification that examined the effect of degree 
    of variation in income in the community (e.g., differentiation between 
    a community with an average income of $30,000 due to all families 
    having this income versus another with an average of $30,000 due to 10% 
    of families making $210,000 and another 90% making $10,000. After a 
    careful review, the technical experts concluded that the data did not 
    support a low income effect or any effect of income variance for SMI. 
    It is important to note that there is a strong low income effect for 
    estimates of persons with severe and persistent mental illness (SPMI), 
    even though such an effect could not be found for SMI.
        It is noteworthy that the analysis of income effects was confined 
    to neighborhoods (Census Tracts) due to the fact that the Census Bureau 
    would not release individual-level family income data cross-classified 
    by other Census variables at either the Tract, County, or State levels. 
    The Census Bureau decision was based on the concern to maintain 
    confidentiality of Census records.
        Some comments requested future consideration of SMI incidence.
        Currently, no nationally representative data are available on 
    incidence of SMI. The group of technical experts has made 
    recommendations to CMHS regarding the need for future data collection 
    to obtain incidence data.
    
    State Differences
    
        Some comments suggested that SMI prevalence was higher in the West 
    and the Southwest, compared with other regions of the US.
        The magnitude of the SMI estimates, averaging approximately 5-6% of 
    the adult population in a year, is very plausible. It is generally 
    agreed that 2-3% of the adult population suffer from severe and 
    persistent disorders such as schizophrenia, other nonaffective 
    psychoses, and bipolar disorder. Based upon the estimation methodology, 
    an additional 2-3% of the adult population suffer from serious anxiety, 
    nonbipolar mood disorders, and other disorders, for a total of 5-6%. It 
    would be highly suspicious if the estimates were any less.
        In the draft notice of the estimation methodology, point estimates 
    were provided for State SMI prevalence figures. In this final notice, a 
    95% confidence interval is used to calculate the SMI prevalence rate as 
    a range. State prevalence of SMI is estimated to be between the lower 
    and upper percent limits for each State. Based on these analysis, one 
    cannot conclude that rates differ among States. Hence, the same 
    prevalence rate and percentage standard error are applied to all States 
    to produce the numerical estimates provided in table 1. See the 
    footnote to table 1 for further information on this estimation 
    procedure.
        Some comments noted that the inclusion of Alzheimer's disease 
    contributes appreciably to the counts and that, since the definition 
    cannot be changed at this point, the report should clearly note that 
    this is the case.
        This is a good suggestion.
        Some comments suggested that only 10 States are at or below the 
    national average, and that the majority of these States are quite 
    small, therefore a mathematical explanation of this phenomenon would be 
    appropriate.
        This comment does not reflect the nature of the estimation 
    methodology. As stated in the draft Federal Register notice of March 
    23, 1997, Volume 62, No 60, page 14931, the national total estimated 
    number of persons with SMI is derived from direct, weighted counts
    
    [[Page 33893]]
    
    from the surveys used. However, the State totals were computed from 
    synthetic modeling at the County level, and county estimates were 
    summed to arrive at State totals. These two approaches are not the 
    same. Therefore, they are subject to different types of sampling and 
    non-sampling errors. As a result, the sum of State totals will not 
    necessarily equal the U.S. total, and State estimates cannot be 
    compared directly with the national average.
        Some comments suggested that use of national probability estimates 
    did not permit consideration of regional and state differences, which 
    could affect the relationship between key analytical variables.
        Because of the difficulty of obtaining data, the technical experts 
    made the assumption that the effects of all the predictor variables 
    were the same across all States. More precise estimates could have been 
    made if representative samples from each State were available.
    
    Other Related Comments
    
        Some comments noted that the exclusion of homeless and 
    institutionalized persons, those living in group quarters, and those 
    without telephones excludes the segments of the population with the 
    highest risk of SMI.
        The Epidemiologic Cachement Area (ECA) and the National Commobidity 
    Survey (NCS) studies were both household surveys, so there is no 
    exclusion of non-telephone households. Although national data were used 
    to estimate the overall U.S. prevalence of the omitted population 
    groups, due to lack of data, no attempt was made to estimate how many 
    homeless people or persons in the other excluded segments reside in 
    each State.
        Some comments suggested the need to have prevalence estimates for 
    Puerto Rico.
        The prevalence estimates for Puerto Rico are included in this 
    notice.
        Some comments suggested validity studies that could form the basis 
    for modifications and refinements to the estimation methodology.
        Validation studies could help refine the estimation methodology. 
    However, the mandate to the technical experts was to develop the best 
    estimates with currently available data rather than only propose new 
    data collections. As noted earlier, the technical experts have 
    recommended that CMHS carry out a nationally representative survey once 
    each decade in the Census year explicitly designed to assess the 
    prevalence of SMI and SPMI, with oversampling to allow estimation by 
    State. Execution of validation studies as part of this survey would 
    permit the evaluation of and increased precision in State-level 
    estimates.
        Some comments urged SAMHSA to increase Block Grant Funds for States 
    to offer services to the number of persons who have SMI.
        The first step in such a process is the one currently being 
    undertaken, i.e., using the estimation methodology to produce estimates 
    showing that the number of adults with SMI exceeds the number who can 
    be served with currently available funds.
    
    SMI Estimation Methodology
    
    Data Sources
    
        Data from two major national studies, the NCS and the ECA, were 
    used to estimate the prevalence of adults with SMI. The NCS, a 
    nationally representative sample household survey conducted in 1990-91 
    assessed the prevalence of DSM-III-R disorders in persons aged 15-54 
    years old. This sample included over 1,000 census tracts in 174 
    counties in 34 States. The ECA, a general population survey of five 
    local areas in the U.S., was conducted in 1980-85 to determine the 
    prevalence of DSM III disorders in persons age 18 and older. The ECA 
    data utilized for the present analysis were limited to the Baltimore 
    site because that was the only site that had disability data needed to 
    operationalize the criteria for SMI. Although the Baltimore sample is 
    not nationally representative, it is used in this analysis because the 
    ECA provides a rough replication and check on the NCS data. Also, the 
    NCS does not have data on persons age 55 and older, so the ECA data are 
    used to estimate the prevalence of serious mental illness among persons 
    55 years and older.
        The group of technical experts determined that it is not possible 
    to develop estimates of incidence using currently available data. 
    However, it is important to note that incidence is always a subset of 
    prevalence. In the future, information on both incidence and prevalence 
    data will need to be collected.
    
    Serious Mental Illness (SMI)
    
        As previously defined by CMHS, adults with a serious mental illness 
    are persons 18 years and older who, at any time during a given year, 
    had a diagnosable mental, behavioral, or emotional disorder that met 
    the criteria of DSM-III-R and ``* * * that has resulted in functional 
    impairment which substantially interferes with or limits one or more 
    major life activities.* * *.'' The definition states that ``* * * 
    adults who would have met functional impairment criteria during the 
    referenced year without the benefit of treatment or other support 
    services are considered to have serious mental illnesses. * * *'' DSM-
    III-R ``V'' codes, substance use disorders, and developmental disorders 
    are excluded from this definition.
        The following criteria were used to operationalize the definition 
    of serious mental illness in the NCS and ECA data:
        (1) Persons who met criteria for disorders defined as severe and 
    persistent mental illnesses (SPMI) by the National Institute of Mental 
    Health (NIMH) National Advisory Mental Health Council (National 
    Advisory Mental Health Council, 1993).
        To this group were added:
        (2) Persons who had another 12-month DSM-III-R mental disorder 
    (with the exclusions noted above), and
    
    --Either planned or attempted suicide at some time during the past 12 
    months, or
    --Lacked any legitimate productive role, or
    --Had a serious role impairment in their main productive roles, for 
    example, consistently missing at least one full day of work per month 
    as a direct result of their mental health, or
        -Had serious interpersonal impairment as a result of being totally 
    socially isolated, lacking intimacy in social relationships, showing 
    inability to confide in others, and lacking social support.
    
    Estimation Procedures
    
        Two logistic regression models were developed to calculate 
    prevalence estimates for adults with SMI.
        (a) A Census Tract Model for years in which the decennial U.S. 
    census is conducted.
        (b) A County-Level Model to be used in intercensal years.
        In non-censal years, the county-level model will be used to 
    estimate SMI prevalence, after adjusting for its known relationship 
    with the census tract model.
    
    Formula
    
    Census-Tract Model
        Using 1990 census data, a logistic regression model was developed 
    to calculate predicted rates of SMI for each cell of an age by sex by 
    race table for each of the 61,253 Census Tracts in the country. Next, 
    the rates were multiplied by cell frequencies and subtotaled to derive 
    tract-level estimates. Finally, the tract-level estimates were 
    aggregated to arrive at county-level and state-level prevalence 
    estimates of adults with SMI. This regression methodology is often used 
    in small area estimation (Ericksen,
    
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    1974; Purcell & Kish, 1979). The actual Census Tract Model equation is 
    specified immediately below:
    
                   Parameter Estimates for Census Tract Model
    ------------------------------------------------------------------------
                                                             95% Confidence
                 Predictor                  Odds ratio          interval
    ------------------------------------------------------------------------
        Intercept.....................              *0.02        (0.01-0.04)
    ------------------------------------------------------------------------
                  Individual-Level Variables
    ------------------------------------------------------------------------
    Age:
        18-24.........................              *1.94        (1.18-3.17)
        25-34.........................               1.32        (0.86-2.03)
        35-44.........................               1.46        (0.96-2.21)
        45-54.........................               1.00
    Sex:
        Female........................              *2.23        (1.57-3.19)
        Male..........................               1.00
    Race:
        Nonhispanic white.............               1.00
        Black/Hispanic/other..........              *0.49        (0.28-0.87)
    Marital Status:
        Married/Cohabiting............               1.00
        Never Married.................              *3.90        (1.15-3.08)
        Separated/Divorced/Widowed....              *1.88        (2.41-6.31)
    ------------------------------------------------------------------------
                 Census Tract Level Variables
    ------------------------------------------------------------------------
        F2 (High socio-economic                      1.16        (0.90-1.49)
         status)......................
        F4 (Immigrants)...............               0.99        (0.85-1.14)
    ------------------------------------------------------------------------
                    County-Level Variables
    ------------------------------------------------------------------------
    County Urbanicity:
        Metropolitan..................               1.12        (0.85-1.49)
        Other.........................               1.00
    ------------------------------------------------------------------------
                 Interactions Among Variables
    ------------------------------------------------------------------------
    FemaleXSeparated/Divorced/Widowed.              *0.47        (0.24-0.91)
    FemaleXNever Married..............              *0.47        (0.28-0.78)
    Non WhiteXSeparated/Divorced/                   *2.62        (1.29-5.33)
     Widowed..........................
    Non WhiteXNever Married...........               1.81        (0.95-3.44)
    FemaleXF2.........................              *0.70        (0.51-0.96)
    UrbanicityXF2.....................              *0.75        (0.52-0.95)
    F2XF4.............................              *0.78       (0.64-0.94)
    ------------------------------------------------------------------------
    *Significant at the .05 level, two tailed test; F2=Census Tract factor
      score for high socioeconomic status (SES); F4=Census Tract factor
      score for immigrants.
    
        The estimate for persons 55 years and older is derived from 
    analysis of ECA data in conjunction with NCS data. The prevalence 
    ratios among ECA respondents ages 55-64 and 65 years and above, were 
    found to be 84 and 31 percent as large, respectively, as the prevalence 
    estimate for NCS respondents 18-54 years old, after controlling for 
    differences in gender and race. NCS State-level estimates were 
    extrapolated using these ratios. These ratios did not differ 
    significantly by sex or race. A factor of .81 was applied to State-
    level SMI estimates for the age range 18-54 to derive the rate for the 
    age range 55-64, and .31 was used to arrive at the estimate for person 
    65 and older. A weighted sum (by age distribution of each State) was 
    calculated to determine the final State-level SMI prevalence estimate.
    County Model
        U.S. Census Bureau tract-level data are available only for years in 
    which the decennial U.S. Census is conducted. To obtain prevalence 
    estimates for adults with SMI during intercensal years, the group of 
    technical experts used biennial individual- and county-level data from 
    the Census Bureau's small area estimation program. Predicted values 
    from the logistic regression equation were used to calculate county-
    level estimates. In contrast to the Census Tract Model, the initial 
    estimates using this approach were generated at the county level. These 
    county-level estimates are then summed to provide State-level 
    prevalence estimates. The actual county-level model equation is 
    specified immediately below:
    
                   Parameter Estimates for County-Level Model
    ------------------------------------------------------------------------
                                                             95% Confidence
                 Predictor                  Odds ratio          interval
    ------------------------------------------------------------------------
        Intercept.....................             * 0.04       (0.02-0.07)
    
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                  Individual-Level Variables
    ------------------------------------------------------------------------
    Age:
        18-24.........................               1.69        (1.00-2.85)
        25-34.........................               1.10        (0.65-1.88)
        35-44.........................               1.24        (0.71-2.15)
        45-54.........................               1.00  .................
    Sex:
        Female........................               1.58        (1.17-2.13)
        Male..........................               1.00  .................
    ------------------------------------------------------------------------
                    County-Level Variables
    ------------------------------------------------------------------------
    Urbanicity:
        Metropolitan..................               1.35        (0.99-1.85)
        Other.........................               1.00  .................
    ------------------------------------------------------------------------
    *Significant at the 0.05 level, two-tailed test.
    
        Adjustment for persons age 55 years and older is carried out as in 
    the Census Tract Model. An adjustment factor (Census Bureau, Fay, 1987; 
    Fay & Herriot, 1979) based on the ratio of County-Level Model estimates 
    for 1990 and Census Tract Model estimates for 1990 can be used to 
    adjust estimates for subsequent years from the County-Level Model. This 
    procedure assumes that the Census Tract Model is more accurate than the 
    County-Level Model.
    
    County and State Estimates
    
        As stated earlier, Census Tract Model prevalence estimates were 
    summed to derive county estimates, and county estimates were summed to 
    arrive at State estimates. The 12-month prevalence of SMI is estimated 
    nationally to be 5.4 percent (with a standard error of 0.9 percent) or 
    10.2 million people in the adult household population (95 percent 
    confidence interval ranging from 7.0 million to 13.4 million), of which 
    2.6 percent or 4.8 million adults have SPMI (figure 1). When the 
    standard error is considered, State estimates do not vary. Hence, State 
    estimates are defined as 5.4 percent of the adult population, with a 95 
    percent confidence interval of plus or minus 1.96 times 0.9 percent.
        The above estimates are based on noninstitutionalized persons 
    residing in the community. Limited information currently exists on SMI 
    estimates for persons institutionalized (i.e., persons in correctional 
    institutions, nursing homes, the homeless, persons in military 
    barracks, hospitals/schools/homes for persons who are mentally ill or 
    mentally retarded). Fischer and Breakey (1991) indicate that, on 
    average, the SMI prevalence rate for these groups (including about 5 
    million people or 2.7 percent of the U.S. adult population) is about 50 
    percent. The following assumptions were made in deriving rough 
    estimates of SMI prevalence for persons who are institutionalized: (a) 
    For 1.1 million residents of correctional institutions, 100 percent of 
    whom are adults, prevalence of SMI is estimated to be 57 percent; (b) 
    For 1.8 million residents of nursing homes, 100 percent of whom are 
    adults, prevalence of SMI is estimated to be 46 percent; (c) For 0.5 
    million persons who are homeless, 80 percent of whom are adults, 
    prevalence of SMI is estimated to be 50 percent; (d) For 0.6 million 
    persons in military barracks, all of whom are adults, the SMI 
    prevalence rate is equivalent to that of the adult household 
    population; (e) For 0.4 million persons in hospitals, homes, and 
    schools for persons who are mentally ill, 80 percent of whom are 
    adults, prevalence of SMI is estimated to be 100 percent. (f) For 0.6 
    million persons in other institutional settings such as chronic disease 
    hospitals, homes and schools for persons with physical disability, and 
    rooming houses, 50 percent of whom are adults, prevalence of SMI is 
    estimated to be 50 percent.
        State estimates of each of these populations can be added to the 
    State SMI populations identified below.
        Only a portion of adults with SMI seek treatment in any given year. 
    Due to the episodic nature of SMI, some persons may not require mental 
    health service at any particular time.
    
    Provision of Estimates to States
    
        CMHS will provide each State mental health agency with estimates in 
    order to initiate the first cycle of use. Subsequently, CMHS will 
    provide technical assistance to States to implement the methodology 
    using State demographic information.
        The intial set of State estimates is provided in table 1 below. 
    Further background information on these estimates can be found in 
    Kessler, et al. (1998).
    
              Table 1.--Estimated 12-Month Number of Persons With Serious Mental Illness, Age 18 and Older
                                                   [By State, 1990 *]
    ----------------------------------------------------------------------------------------------------------------
                                                                                          95% confidence interval
                                  State                               Point estimate -------------------------------
                                                                                        Lower limit     Upper limit
    ----------------------------------------------------------------------------------------------------------------
    Alabama.........................................................         161,017         110,327         211,708
    Alaska..........................................................          20,396          14,730          26,817
    Arizona.........................................................         144,942         104,680         190,572
    Arkansas........................................................          93,398          63,995         122,801
    California......................................................       1,188,502         814,344       1,562,660
    Colorado........................................................         131,389          90,026         172,752
    
    [[Page 33896]]
    
     
    Connecticut.....................................................         137,027          93,889         180,165
    Delaware........................................................          27,153          18,605          35,701
    District Columbia...............................................          26,450          18,123          34,776
    Florida.........................................................         543,871         372,652         715,090
    Georgia.........................................................         256,549         175,784         337,315
    Hawaii..........................................................          44,718          30,640          58,795
    Idaho...........................................................          37,711          27,235          49,582
    Illinois........................................................         458,149         313,917         602,381
    Indiana.........................................................         220,763         151,263         290,262
    Iowa............................................................         111,125          76,141         146,109
    Kansas..........................................................          98,062          67,190         128,933
    Kentucky........................................................         147,485         101,054         193,915
    Louisiana.......................................................         161,606         110,730         212,482
    Maine...........................................................          49,622          34,000          65,244
    Maryland........................................................         195,438         133,911         256,965
    Massachusetts...................................................         251,821         172,544         331,098
    Michigan........................................................         369,173         252,952         485,394
    Minnesota.......................................................         173,249         118,708         227,790
    Mississippi.....................................................          98,629          67,579         129,678
    Missouri........................................................         205,321         140,683         269,959
    Montana.........................................................          31,156          21,348          40,964
    Nebraska........................................................          62,066          42,527          81,605
    Nevada..........................................................          48,864          33,481          64,247
    New Hampshire...................................................          44,847          30,728          58,965
    New Jersey......................................................         320,259         219,437         421,082
    New Mexico......................................................          57,690          39,528          75,851
    New York........................................................         741,469         535,505         974,894
    North Carolina..................................................         271,214         185,832         356,597
    North Dakota....................................................          25,024          17,146          32,902
    Ohio............................................................         434,558         297,753         571,363
    Oklahoma........................................................         124,663          85,417         163,909
    Oregon..........................................................         114,382          78,373         150,392
    Pennsylvania....................................................         490,689         336,213         645,165
    Puerto Rico.....................................................         195,719         159,550         231,817
    Rhode Island....................................................          42,000          28,778          55,222
    South Carolina..................................................         138,591          94,960         182,221
    South Dakota....................................................          26,867          18,409          35,325
    Texas...........................................................         656,136         449,575         862,698
    Tennessee.......................................................         197,671         135,441         259,901
    Utah............................................................          59,152          40,530          77,774
    Vermont.........................................................          22,662          15,528          29,797
    Virginia........................................................         252,861         173,257         332,466
    Washington......................................................         194,686         133,396         255,977
    West Virginia...................................................          72,895          49,946          95,843
    Wisconsin.......................................................         194,550         133,303         255,798
    Wyoming.........................................................          17,175          11,768          22,582
                                                                     -----------------------------------------------
        Total.......................................................      10,191,412       7,043,431      13,374,301
    ----------------------------------------------------------------------------------------------------------------
    Does not include persons who are homeless or are institutionalized.
    * Because there are no differences among States, the estimate for each State is calculated as 5.4 percent of the
      total State adult population. The size of the 95 percent confidence interval for each State is equal to the
      percentage estimate plus or minus 1.96x0.9 percent. The percentage estimate and the percentage standard error
      are identical across States. However, the numeric estimate and numeric standard error vary depending on the
      State adult population. The percentage standard error (0.9 percent) used to compute the upper and lower 95-
      percent confidence limits is estimated using jackknife repeated replication (JRR) variance analysis (Kish and
      Frankel 1974). The JRR calculations assume that the imputation ratios and the population proportions in the
      different age groups based on the census data are correct. The confidence limits simulate the error introduced
      into the estimates by imprecision in the prevalence estimates for NCS respondents in the age range 18-54.
    
    Limitations
    
        The ECA and NCS were designed to study lifetime prevalence of 
    mental disorders rather than 12-month prevalence. As a result, the 
    emphasis in diagnostic assessment was on lifetime disorders. In 
    addition, functional impairment was not a primary focus in either the 
    ECA or the NCS.
        Current data cannot provide estimates of incidence. Additional 
    information needs to be collected in the future.
        It is anticipated that additional work will be done in future years 
    to refine and update the estimation methodology. CMHS will apprise 
    States as this work develops.
    
    References
    
    Ericksen, E.P. (1974). A regression method for estimating population 
    changes of local areas. Journal of American Statistical Association, 
    69, 867-875.
    
    [[Page 33897]]
    
    Fay, R.E. (1987). Application of multivariate regression to small 
    domain estimation. In R. Platek, J.N.K. Rao, C.E. Sarndal & M.P. 
    Singh (Eds.), Small Area Statistics: An International Symposium, pp. 
    91-102. New York: John Wiley and Sons.
    Fay, R.E., & Herriot, R. A. (1979). Estimates of income for small 
    places: An application of James-Stein procedures to Census data. 
    Journal of the American Statistical Association, 74, 269-277.
    Fischer, P.J., Breakey, W.R. (1991). The Epidemiology of alcohol, 
    drug, and mental disorders among homeless persons. American 
    Psychologist. 46, 1115-1125.
    Kessler, R.C., et al. Estimation of the 12-month Prevalence of 
    Serious Mental Illness (SMI). (1996). Unpublished reports to CMHS.
    Kessler, R.C., et al. Population-Based Analyses: A Methodology for 
    Estimating the 12-Month Prevalence of Serious Mental Illness. R.W. 
    Manderscheid and M.J. Henderson, (eds.) Mental Health, United 
    States, 1998. DHHS Pub. Washington, D.C.: Supt. of Docs. U.S. Govt. 
    Print Off., pp. 99-112, 1998.
    Kish, L., and Frankel, M.R. Inferences from complex samples, Journal 
    of the Royal Statistical Society, Series B 36:1-37, 1974.
    National Advisory Mental Health Council. (1993). Health care reform 
    for Americans with severe mental illness. American Journal of 
    Psychiatry, 150, 1447-1465.
    Purcell, N.J., & Kish, L. (1979). Estimation for small domains. 
    Biometrics, 35, 365-384.
    Regier, D.A., Narrow, W.E., Rae, D.S., Manderscheid, R.W., Locke, 
    D.Z., Goodwin, F.K. (1993). The de Facto US Mental and Addictive 
    Disorders Service System. Archives of General Psychiatry, 50, 85-94.
    
        Dated: June 7, 1999.
    Richard Kopanda,
    Executive Officer, Substance Abuse and Mental Health Services 
    Administration.
    
    BILLING CODE 4162-20-P
    [GRAPHIC] [TIFF OMITTED] TN24JN99.048
    
    
    [FR Doc. 99-15377 Filed 6-23-99; 8:45 am]
    BILLING CODE 4162-20-C
    
    
    

Document Information

Effective Date:
10/1/1999
Published:
06/24/1999
Department:
Substance Abuse and Mental Health Services Administration
Entry Type:
Notice
Action:
Final notice.
Document Number:
99-15377
Dates:
October 1, 1999.
Pages:
33890-33897 (8 pages)
PDF File:
99-15377.pdf