I'm the mother of a disable tennager who was born wiht a disease call
ARTHROGRYPOSIS,if you look at my son you will think he paraplegic but that is
not his case, simply he has no mobility on his arms or legs and he is weelcahir
bound he need help doing every task posibly from eating to going to the bathroom
necesities geting dress having someone wirht for him, mobility by somelse, in
other words he is not capable of doing anithyng by him self, but he is a very smart
younman and this is what had prevented him from geting medicaid waiver, I'm a
single mom wiht no help from any family menber, at the moment I'm 59 years old
and can not provide all the services my son needs, wild there are other, patients
wiht a different dignosis that quilifieds for the waiver my son does not!!, but yet we
need more help than a patient wiht down syndrome or autisim, but because his
disability is phisical not mentaly he is been denied the waiver, even do we need
this very desperly, so please do this changer so that my son will be able to
quilified for the sevices he desprely need, and deserve!!!!!!!!!!!!!!
FL--Individual
This is comment on Proposed Rule
Medicaid Program; Home and Community-Based Services (HCBS) Waivers
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