No name

Document ID: CMS-2012-0142-0023
Document Type: Public Submission
Agency: Centers For Medicare & Medicaid Services
Received Date: December 06 2012, at 12:00 AM Eastern Standard Time
Date Posted: December 20 2012, at 12:00 AM Eastern Standard Time
Comment Start Date: November 26 2012, at 12:00 AM Eastern Standard Time
Comment Due Date: December 26 2012, at 11:59 PM Eastern Standard Time
Tracking Number: 1jw-82dr-5qtm
View Document:  View as format xml

View Comment

Please, ensure that every state’s essential health benefits plan provides coverage for medical foods for the treatment of PKU under the chronic disease management category; and (2) ensure that people with PKU are not discriminated against based on their disability by denying coverage of medical foods. My children have organic acidemias similar to PKU and require special medical foods and formula to manage their health issues. Without this medical treatment, they are at a high risk of serious brain damage or death. Managing their diet with medical foods and formula is critical to their health, and the private costs of these medical foods and formula is akin to a mortgage payment.

Related Comments

    View All
Total: 3,031
Ann Dennison
Public Submission    Posted: 12/20/2012     ID: CMS-2012-0142-0003

Dec 26,2012 11:59 PM ET
Georgia Foltz
Public Submission    Posted: 12/20/2012     ID: CMS-2012-0142-0004

Dec 26,2012 11:59 PM ET
Terri Bukacheski
Public Submission    Posted: 12/20/2012     ID: CMS-2012-0142-0005

Dec 26,2012 11:59 PM ET
MO
Public Submission    Posted: 12/20/2012     ID: CMS-2012-0142-0007

Dec 26,2012 11:59 PM ET
CO
Public Submission    Posted: 12/20/2012     ID: CMS-2012-0142-0008

Dec 26,2012 11:59 PM ET