Attached please find comments by the Burton Blatt Institute on the Genetic
Information Nondiscrimination Act of 2008 proposed regulations. Our main
concerns are (1) the fact that medical records provided to employers will often
contain genetic information and there are no provisions for medical professionals
to prevent such disclosure. Once an employer receives that information, it will be
impossible to "unring the bell" and use of the information, although prohibited, will
occur and be difficult to challenge. (2) There is a gap in coverage between the
protections of GINA (protecting people with unmanifested genetic disabilities) and
the protections of the ADA (protecting people with "substantially limiting"
disabilities). People with manifested, but progressive, genetic disabilities will fall
into this gap throughout much of their working life and will face discrimination
based on the progressive nature of their condition. However, they will have no
protection.
Comment on FR Doc # E9-04221
This is comment on Proposed Rule
Regulations under the Genetic Information Nondiscrimination Act of 2008
View Comment
Attachments:
Comment on FR Doc # E9-04221
Title:
Comment on FR Doc # E9-04221
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