Sandra Myron - Comment

I am a 56 year old female who was diagnosed with CFS in 1995. Prior to the onset of my illness, I worked full-time, went to school and was extremely athletic. My chief complaint is chronic herpes all over my scalp and impaired brain function. I suffer from enlarged lymph nodes in the neck ( one surgically removed). I believe there is a constant draining from the open herpes sores, which have NEVER subsided from the time of the onset of the disease. I get extreme bouts with the Epstein Barr virus. I am also susceptible to cellulitis and intestinal problems. My doctor had me on Vistide a few years ago, it was intravenous and about a 4 month regimen. It was difficult on my body, but after a few weeks, I noticed an improvement in my health, particularily an improvement in my brain function. Another interesting finding was the herpes sores went away within the first 5 minutes of the IV. I felt an improvement for about a year. I currently and have been using herbs to manage my illness. Red Peony ( shingles). Pau d Arco ( Epstein Barr) and GL Compound for my immune system. I must rotate these herbs because my body builds up and immunity to them, therefore, they stop working. As for exercise, prior to the onset of my illness, I worked full time, went to school and was in great physical shape. I ran up to 25 miles a week, cycled, water skied, snow skied and golfed. I am now exercise intolerant and have lost a lot of my muscle strength. As for my mental capacity, I use to read a lot, now I have great difficulty reading; I can barely get through a paragraph. on occasion when driving, I have been pulled over by police officers for what they perceived as drunk driving, only to find out that it is my disease that impairs me, nothing else. This disease is a "slow burn" leaving hundreds of thousands with no medical treatment and no hope. My hope is for the FDA and any other health related agencies take a serious and earnest look into this hideous disease. Sandra Myron