Comment from Herms, Maggie, Relative of CF Patient

Document ID: SSA-2006-0149-0115
Document Type: Public Submission
Agency: Social Security Administration
Received Date: April 05 2013, at 12:00 AM Eastern Daylight Time
Date Posted: April 5 2013, at 12:00 AM Eastern Standard Time
Comment Start Date: February 4 2013, at 12:00 AM Eastern Standard Time
Comment Due Date: April 5 2013, at 11:59 PM Eastern Standard Time
Tracking Number: 1jx-84lu-t58c
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As a sibling of a Cystic Fibrosis patient, I know first hand what my sibling does on a daily basis to maintain her quality of life. Her SSI disability is a huge part of helping her stay alive. Her treatments take hours each day to complete and working is not feasible in order for her to maintain her health. Just because someone isn't in the hospital on a regular basis, doesn't mean that they are able to work full time and support themselves financially. Working will cause my sister to become sick and her health will deteriorate as a result. Not having SSI will force her to work to pay for all of the treatments that she needs. Please reconsider these changes. It not only affects my sister but also thousands of those with Cystic Fibrosis.

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